Christian Simon was born April 12th, 2011. He had Thanatophoric Dysplasia Type 1. He lived to be 3 1/2 years old. We created a YouTube channel to keep everyone updated on his growth. He passed away October 6th, 2014. It is still devastating. I miss him so much. The reason for this post, we have had some serious haters comment on his videos harshly. I have chosen to take most of the negativity down, repot and block those vial people. There are some that are still up and I am working on getting them taken down now.

I don’t understand how some of these people leaving these comments are even functioning. I truly hope these people do not have children of their own and if they do, someone needs to have cps check on their children.

I fought heart and soul for my son. We drove across the country to get him help. I not one time ever complained about caring for him. I would do it all again in a heartbeat if I knew I could have him. I am always asked “if you could do it all over again, would you? and what would you do different?”

My answers are always: “I would in a heartbeat!!” “What I would do different? I would never put him down. I would never be more than 2 steps away from him. I would have never left him unattended with drs that were supposed to be saving him. I would have kept him on the life support.”

Everyone is different and not everyone can understand what I went through and what our family went through. The happiness and miracles that Christian brought us. The heartache and agony that we are still experiencing since he passed away. To this day I fight depression and can’t understand why he isn’t here. I share our life with him to help others understand that miracles do happen. He wasn’t a burden. he wasn’t difficult. He always had smile and oh’s and ah’s.

If you have any questions about Thanatophoric Dysplasia type 1, about Christian, about our journey, please ask. Leave a question. I won’t tolerate any hate comments/bullying.